JoNell Potter, ARNP, Ph.D, Associate Professor at the Department of Obstetrics-Gynecology & Pediatrics, of the University of Miami’s Miller School of Medicine, talks with HIVE’s Shannon Weber about eliminating perinatal HIV in the U.S. and honoring women in the early days. Dr. Potter tells us of the women who volunteered for one of the first studies, “…because they volunteered, they knew, when I looked into their eyes, they knew it wasn’t going to be for them. They knew it would be for the women that would come after them.” Now, we are very close to eliminating perinatal transmission, and “we are really close because of those women that I remember fondly and dearly for being so brave and volunteering. And that led us to where we are today” (Potter).

 

 

For more information on the elimination of perinatal transmission, watch this video of Margaret Lampe, M.P.H., R.N., of the CDC in Atlanta, talking with HIVE’s Shannon Weber at the Elimination of Mother to Child Transmission Stakeholders Group in Washington, D.C. Also check out Shannon Weber & Dr. Bob Grant’s JANAC article, “Ending Sexual HIV Transmission: Lessons Learned from Perinatal HIV.”

 

 

JoNell Potter, ARNP, Ph.D, and Deborah Jones Weiss, Ph.D, discuss family planning and safer conception options that are offered to women living with HIV at the University of Miami Miller School of Medicine. Drs. Potter and Weiss put together a few studies to ask women living with HIV what their desires were around having children. They were surprised to discover that 80% of the women wanted to have kids. Dr. Weiss says that, “to a large extent, they were concerned about talking to their providers… they had good relationships with their doctors, but they felt a little discomfort, or inhibition.” So the researchers went and spoke with the many different kinds of doctors who served these patients, and it turned out that each thought the other doctors were having these conversations (about desires for children) with these patients.

In the fall, a family planning and safer conception clinic is going to open at the University of Miami, so that women living with HIV can get the help they need with disclosing to their partners, de-stigmatizing disclosure, exploring safer conception options, and planning their families in the most ideal ways possible.

The PATHWAYS study video is available here.

 

 

JoNell Potter, Ph.D, Lindsay Smith, ARNP, Ob-Gyn, and Nelly Diaz-Mendez, Ob-Gyn describe the wonderful Centering Pregnancy program for women living with HIV at the University of Miami, FL, that’s been established since the early 1980’s. There are only two of these programs specifically for women living with HIV in the U.S.

For more information on the other Centering Pregnancy program for women living with HIV, check out this video of Shannon Weber interviewing Dr. Judy Levison on her centering pregnancy program for women living with HIV that she has pioneered at Houston’s Thomas Street Clinic.